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Rett Syndrome Family Resources International Rett Syndrome Association
[http://www.rettsyndrome.org]

National Institute of Neurological Disorders and Stroke
[http://www.ninds.nih.gov/health_and_medical/pubs/rett.htm]

NIH Office of Rare Diseases
[http://rarediseases.info.nih.gov/]

National Organization for Rare Disorders
[http://rarediseases.org]

Rett Syndrome Research Foundation
[http://www.rsrf.org]

Suggested Reading

Hunter, Kathy. The Rett Syndrome Handbook. Clinton, Maryland: International Rett Syndrome Association, 1999.

Icon Health Publications. The Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory for the Internet Age. San Diego: Icon Group International, 2002.

Kerr A, Engerström IW. The Rett disorder and the developing brain. Oxford: Oxford University Press, 2001.

Lindberg, Barbro and A. Rett. Understanding Rett Syndrome: A Practical Guide for Parents, Teachers, and Therapists. Cambridge: Hogrefe & Huber, 1994.

Additional Disorder Specific Resources

Fragile X Syndrome
Down Syndrome
X-Linked Mental Retardation
Smith-Lemli-Opitz-Syndrome
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